This kid is going to age me about fifty years. Everyone who knows us knows Koah has seen some struggles in his six years. He's had low muscle tone since birth resulting in physical therapy the past 5 1/2 years. He's had a couple MRI's, EKG, EEG, more blood work than I've had. At two the Dr's noticed sensory problems and several things that pointed to him being on the Spectrum. But in all honesty we've done great. We've had behavior issues but if you've met Karsyn you'd understand any child would be hard to top her with behavior problems. It seems like every year we've had these downward slopes. For a couple months he starts to regress and do some out of the ordinary things. He becomes more sensitive to sound and stimulation. I notice it in his behavior. But we always get out of those slumps and he does great. He's really been an awesome kid. He hasn't really noticed he's "different". School work is hard for him but I'm blessed enough to have the opportunity to homeschool. I'm able to take that alone time and teach in other ways that help get his brain going. Our life works and we've made it our "normal".
But Lately… I noticed about a month or so ago a behavior change. He's talking very immature he's acts closer to a four year old than a six year old. He's started to be extremely impulsive and do things he typically wouldn't do or that he knows not to do. A few examples in the last few weeks… He let his brother outside and out of the front gate and Kabe almost drowned, He went on a walk with my mom and rode his big wheel and he left her and drove around our block on his own, He went to a birthday party last weekend and threw a toy over the fence, He spit in a kids plate, He shot another kid in the eye with a nurf gun, He threw a bouncy ball as hard as he could across the living room, He's starting to squeeze or press on the baby really hard (not in a mean way, in a over excited I can't control what I'm doing way while he laughs.) , He's trying to pick the baby up for no reason, He told his sister to cut her hair…She DID. He pinched one of my friends butt, and NO he's never seen anyone do that. I know some of these things sound silly but he knows better and has been told not to do every single one of these. I've talked to his therapist about it and she notices the change in behavior. He's blank, He's "not there", He sits with his mouth wide open and his tongue hanging out. He's needing a lot of oral stimulation. It seems as if he completely changed in such a short amount of time. He isn't getting or processing things like he should be. He's just a different kid and it sucks. His Ot therapist, who is amazing by the way gave me some pretty good advice. She thinks maybe since we've had the baby our schedule has completely been lost. He has no structure. Its summer so we go from here to there and we have something going on every day. His body doesn't know how to react to it. He's always needed organization, a schedule, and some structure or he acts out. So for now we're going to try to get back to a routine. School starts soon so that will help a lot too.
I just miss my Koah. I miss my kid who made good choices and never argued. I miss him being a helper and now I have to keep the little ones safe from him. I miss not having to constantly get on him for making some impulsive bad decision. I miss not having to worry when I go to a friends house what he's going to do to get in trouble. I just want this phase to be gone.
